Support in one location.

Patient support available for you

Ultragenyx is committed to patients with rare diseases, which is why we created UltraCare Patient Services for DOJOLVI—your guide throughout your DOJOLVI treatment journey.

Our UltraCare Case Managers have varied backgrounds, including social workers, healthcare professionals, and patient advocates, and are ready to help you gain and maintain access to DOJOLVI.

UltraCare Case Managers can help you with:

Reimbursement Navigation
Educational Support
Adherence Support
Financial Support
Pharmacy Services
Bilingual Support

Take the first step

Step 1: Ask your healthcare
provider to fax your completed*
Enrollment Form to 1-833-592-2273 (CARE).

Step 2: Sign up by visiting UltraCare Patient Services or call 1-833-388-5872 (U-LTRA) to connect with our UltraCare Case Managers.

Visit UltraCare

*Please note that a completed form is required for patient enrollment.

Download DOJOLVI materials

DOJOLVI Brochure
and Dosing Guide

Learn about LC-FAOD, DOJOLVI, and patient support available to you

DOJOLVI® (triheptanoin) Patient Brochure

Daily
Dosing Tracker

A tool you can use to keep track of your DOJOLVI doses and notes for your healthcare team

DOJOLVI® (triheptanoin) Daily Dosing Tracker

Materials Compatibility
Reference

A reference overview of materials that are compatible or incompatible to use with DOJOLVI.

DOJOLVI® (triheptanoin) Daily Dosing Tracker

Instructional Dosing Videos

Precautions

Press-in Bottle Adapter

Syringe Dosing

Syringe Cleaning

Dosing Cup

Dosing Cup Cleaning

Instructional Mixing Videos

Mixing DOJOLVI into fat-free milk

Mixing DOJOLVI into fat-free yogurt

Mixing DOJOLVI into whole-grain hot cereal

Mixing DOJOLVI into a fat-free, low-carbohydrate smoothie

Learn more and find your community

Metabolic disease information and advocacy

Canadian advocacy organization working to educate and support patients with mitochondrial disease and their families

An advocacy organization working to educate and support patients with mitochondrial disease and their families

A scientific organization specifically dedicated to research and education about fatty acid oxidation disorders

Rare disease information and advocacy

A center within the National Institutes of Health (NIH) that maintains a list of rare diseases and related terms to help people find reliable information about their disease

An advocacy organization that provides support, education, and resources to the rare disease community

What is DOJOLVI used for?

DOJOLVI is used as a source of calories and fatty acids to treat adults and children with long-chain fatty acid oxidation disorders (LC-FAOD).

To help avoid side effects and ensure proper use, talk to your healthcare professional before you take DOJOLVI. Talk about any health conditions or problems you may have, including if:

You have feeding tube problems. Feeding tubes can break down over time. It is possible that using DOJOLVI with a feeding tube might also contribute to its breakdown. Check the feeding tube regularly to ensure it is not damaged and is working properly
You have pancreatic insufficiency. This is a condition where the pancreas does not make enough enzymes to help digest food properly
You or your partner are pregnant or planning to get pregnant
You are breastfeeding or plan to breastfeed

Visits with your healthcare professional: You should have regular visits with this healthcare professional so they can:

Determine how DOJOLVI is working for you
Make adjustments to your dose
Talk to you about your diet

Tell your healthcare professional about all the medicines you take, including any drugs, vitamins, minerals, natural supplements or alternative medicines.

The following may interact with DOJOLVI:

Medicines called pancreatic lipase inhibitors, which act on enzymes in the gastrointestinal tract. An example is the medicine orlistat
A medicine used to treat seizures, bipolar disorder or migraines called valproic acid

What are possible side effects from using DOJOLVI?

Abdominal pain
Vomiting
Diarrhea
Nausea

These are not all the possible side effects you may feel when taking DOJOLVI. If you experience any side effects not listed here, contact your healthcare professional.

If you want more information about DOJOLVI:

Talk to your healthcare professional
Find the full Product Monograph that is prepared for healthcare professionals and includes the Patient Medication Information by visiting the Health Canada website (https://www.canada.ca/en/health-canada.html), the manufacturer’s website (https://www.ultragenyx.com/canada/medicines/dojolvi-product-monograph-CANADA/) or by calling 1-833-388-5872.

What is DOJOLVI used for?

DOJOLVI is used as a source of calories and fatty acids to treat adults and children with long-chain fatty acid oxidation disorders (LC-FAOD).

To help avoid side effects and ensure proper use, talk to your healthcare professional before you take DOJOLVI. Talk about any health conditions or problems you may have, including if:

You have feeding tube problems. Feeding tubes can break down over time. It is possible that using DOJOLVI with a feeding tube might also contribute to its breakdown. Check the feeding tube regularly to ensure it is not damaged and is working properly
You have pancreatic insufficiency. This is a condition where the pancreas does not make enough enzymes to help digest food properly
You or your partner are pregnant or planning to get pregnant
You are breastfeeding or plan to breastfeed

Visits with your healthcare professional: You should have regular visits with this healthcare professional so they can:

Determine how DOJOLVI is working for you
Make adjustments to your dose
Talk to you about your diet

Tell your healthcare professional about all the medicines you take, including any drugs, vitamins, minerals, natural supplements or alternative medicines.

The following may interact with DOJOLVI:

Medicines called pancreatic lipase inhibitors, which act on enzymes in the gastrointestinal tract. An example is the medicine orlistat
A medicine used to treat seizures, bipolar disorder or migraines called valproic acid

What are possible side effects from using DOJOLVI?

Abdominal pain
Vomiting
Diarrhea
Nausea

These are not all the possible side effects you may feel when taking DOJOLVI. If you experience any side effects not listed here, contact your healthcare professional.

If you want more information about DOJOLVI:

Talk to your healthcare professional
Find the full Product Monograph that is prepared for healthcare professionals and includes the Patient Medication Information by visiting the Health Canada website (https://www.canada.ca/en/health-canada.html), the manufacturer’s website (https://www.ultragenyx.com/canada/medicines/dojolvi-product-monograph-CANADA/) or by calling 1-833-388-5872.